Actually Autistic Blogs List How do you want your blog listed?

Thanks. Unless you request otherwise, your blog will be described as:

Daily Life with Asperger’s Al Kutil; 60s; Dx34; Married; semi-retired; autism research; Wisconsin, USA;

How do (or might) you use the Actually Autistic Blogs List? What might be done to make the list more accessible and useful?

Judy (An Autism Observer)

Actually Autistic Blogs List

On Sun, Sep 2, 2018 at 1:38 PM Al Kutil <donotreply> wrote:

Name: Al Kutil

Email: gubi411fimi


Have you had any other blogs possibly on the Actually Autistic Blogs List?: I’ve had other blogs but since they don’t mention autism they are unlikely to have included on the Actually Autistic Blogs List. (Please feel free to enter them below if you want me to check anyway.)

** Please list below (by name or URL) any entries that should be removed from the Actually Autistic Blogs List (previous blogs of yours and/or bad links such as deleted, password-protected, or moved blogs).:

How old were you when you received your ASD diagnosis (or realized you were probably Autistic)? It’s OK to specify a range, such as ’20s’, ’18+’ (for adulthood), 18- (for childhood), or ’50+’ (above age 50), etc.: 34

Which (if any) of the labels below would you like to have included in your blog’s description? (Male and Woman are included but not Man or Female so that text searches work properly): Other (please describe in one of the text fields below)

Which co-occurring conditions (if any) do you wish to disclose? See our ‘About the list/Abbreviations’ page (top menu) for examples.: ASD

If want your age included, provide your birth date (month/day/year) below. (This will only be used to update your age annually; it will not be publicly viewable.): 8/6/1957

Do you want your age indicated only by decade (20s, 30s, etc)?: Yes

If you have children, provide below their genders, neurological conditions (Autism, suspected Autism, and/or others), and/or any other information you want included. If you want their ages listed, provide their birth dates (which will not be publicly viewable).: No Children

If you want your relationship status (married, single, divorced, etc.) included, provide it below. Include your partner’s neurological condition(s) (Autistic, etc) if you wish.: Married

What (approximate) percentage of your blog posts relate primarily to autism? Do you have a category or tag for your autism-related posts? If so, what is it? (If you have more than one provide the primary one, with the URL if you know it.): 90%. Occasionally may be of interest to other parents because it relates to education, other disabilities, or advocacy.

What other topics do you blog about often, in decreasing order of frequency? (These will not be included in your blog’s description but may be used later.):

What is your geographical location (as general as you like, preferably including country)?: Wisconsin

What is your current occupation?: Semi-retired

What else would you like included in your blog’s listing (such as frequent blog topics, your ethnicity, strengths, talents, etc.), preferably in four words or less?: Autism Research

If you want your real name included, provide it below.: Al Kutil

Do you want your blog’s listing to link to any other websites (not necessarily autism-focused, but must feature your creative output)? If so, enter their URL’s below.:

Provide below the names or URL’s of any blogs by Autistic bloggers that may not be on the list.:

Do you have any additional comments or suggestions?:

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Please Talk to Your Kids About Disabilities | The Mighty

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Anyone can sign up to be a #DisabilityGamechanger

That’s why we need to change the game @skyrhiannon 💪 Anyone can sign up to be a #DisabilityGamechanger here:

Scope added,

Rhiannon MillsVerified account @SkyRhiannon
How can this happen in 2018! New report from @scope shows half of disabled people feel excluded from society. Really eloquent interview with @ShaniDhanda Makes me think is equality legislation really working & how do we change social attitudes? …

8:29 AM – 23 Aug 2018

Al Kutil

Tell me and I forget. Teach me and I remember. Involve me and I learn. – Benjamin Franklin

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autism apps android – Google Search

Simple search, powerful results!
Also includes iPad, iPhone, Android, special needs, etc.

Here are a few:

13 apps that support and empower the autistic community – Mashable

Autism Language and Cognitive Therapy with MITA

The Best Autism Apps of 2017 – Healthline

6 Android Apps for Special Needs

11 Expert-Recommended Autism Apps for Kids | Parenting

5 Helpful Android Apps for Autism – Joy of Android

More results
apps for high functioning autism apps for adults

apps for nonverbal autism

free communication apps for autism

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Application of a Ketogenic Diet in Children With Autistic Behavior: Pilot Study

Athanasios Evangeliou, MD; Ioannis Vlachonikolis, MD; Helen Mihailidou, MD; Martha Spilioti, MD; Astrinia Skarpalezou, MD; Nikolaos Makaronas, MD; Ahilleas Prokopiou, MD; Panagiotis Christodoulou, MD; Georgia Liapi-Adamidou, MD; Emmanouel Helidonis, MD; Stylianos Sbyrakis, MD; Jan Smeitink, MD

A pilot prospective follow-up study of the role of the ketogenic diet was carried out on 30 children, aged between 4 and 10 years, with autistic behavior. The diet was applied for 6 months, with the continuous administration for 4 weeks, interrupted by 2-week diet-free intervals. Seven patients could not tolerate the diet, whereas five other patients adhered to the diet for 1 to 2 months and then discontinued it. Of the remaining group who adhered to the diet, 18 of 30 children (60%), an improvement was recorded in several parameters and in accordance with the Childhood Autism Rating Scale. Significant improvement (> 12 units of the Childhood Autism Rating Scale) was recorded in two patients (pre-Scale: 35.00 ± 1.41[mean ± SD]), average improvement (> 8–12 units) in eight patients (pre-Scale: 41.88 ± 3.14[mean ± SD]), and minor improvement (2–8 units) in eight patients (pre-Scale: 45.25 ± 2.76 [mean ± SD]). Although these data are very preliminary, there is some evidence that the ketogenic diet may be used in autistic behavior as an additional or alternative therapy. (J Child Neurol 2003;18:113–118).

I sent this email to Board Members Nancy Alar, Danielle Tolzmann, Char Brandl, and Erin Finger — from Alvin Kutil
Have you heard of anyone using the ketogenic diet for their autistic children?
What success did they have?
Have any Wisconsin Autism Doctors applied this protocol?

To the best of my knowledge, I am not aware of any doctors having any knowledge or experience in this area.
What experience has any of you had with gluten-free, casein-free, or soy free diets on children or adults on the spectrum?

There is some indication that GABA and glutamate can impact those on the spectrum. Low levels of GABA means a high level of glutamate, which can have an adverse reaction to brain development and sensory problems, and could cause tinnitus in children and adults. The limbic system and temporal area of the brain may be involved, and I would suspect that a SPECT scan could help diagnose potential problems.

SPECT: An acronym that stands for Single Photon Emission Computed Tomography, a nuclear medicine procedure in which a gamma camera rotates around the patient and takes pictures from many angles, which a computer then uses to form a tomographic (cross-sectional) image.

Definition of SPECT – MedicineNet

Please forward this to the other board members not included in this email!

For those of you who read this email at my News Blog or Autism Blog, please let me know if you have experience with Ketogenic, doctors who are familiar or have studied it and its application to ASD or tinnitus, Please let me know what your results were and whether the ketogenic diet was helpful or not. It would also be helpful if you include doctors involved, the path you took to get to a doctor who could help, and any other helpful information you found that helped your child on their spectrum journey as it relates to glutamate, gluten, casein, or soy sensitivity.

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​After 42 Years In Institutions, A Home Of Her Own

After 42 Years In Institutions, A Home Of Her Own

A woman with an intellectual disability who has been housed in state institutions for over four decades may finally get a chance to live in the community after a judge ordered her release. Read More >
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Lowe’s Pulling Products Amid Concerns About Disability Ties

Heeding calls from advocates, one of the nation’s largest home improvement stores says it will remove certain products with possible links to developmental disabilities from its shelves.

Lowe’s said late last month it will stop selling paint removal products containing the chemicals methylene chloride, or DCM, and N-methyl pyrrolidone, or NMP, by the end of the year.

Children who are exposed to the chemicals during pregnancy face a higher risk of development issues that can contribute to learning and developmental disabilities, according to advocates

In April, a coalition of groups including The Arc, the Autism Society of America and the American Network of Community Options and Resources, or ANCOR, wrote to Lowe’s chairman and CEO Robert A. Niblock asking the company to halt sales of the products.

“Scientific evidence from multiple studies shows that both men’s and women’s exposures to toxic solvents including DCM and NMP are linked to lasting problems with brain development, cognition and behavior in their children,” the groups wrote. “We ask that you take action now to help protect people’s health and lives, especially those of childbearing age, by phasing out the sale of these toxic products within six months or less.”

The Environmental Protection Agency had proposed a ban on the chemicals, but put the plan on indefinite hold last year, the advocacy groups said.

Lowe’s did not specifically cite the disability groups’ concerns in its announcement but said the company is committed to working with the EPA on establishing a consistent industry standard while also encouraging vendors to improve labeling.

The retailer indicated that it already offers several paint removal options that do not contain methylene chloride and plans to add more.

“We care deeply about the health and safety of our customers, and great progress is being made in the development of safer and more effective alternatives,” said Mike McDermott, chief customer officer at Lowe’s. “As a home improvement leader, we recognize the need for viable paint removal products and remain committed to working closely with suppliers to further innovate in this category.”

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Lynn Parramore: How Corporations Groom Kids For Servitude – YouTube

​Now I begin to understand why voucher schools contribute to the dilemma of funding our public schools​. I hope no one is offended that I sent this to most board members, but I’m hoping to confirm (or deny) that my school ideas are on the right track. I welcome your input.

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Autism Test For Babies, Caregiver Turnover Hard On Families, Special Olympics, Nike and More News

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How to Be a Better Friend to an Adult with ASD

How to Be a Better Friend to an Adult with Aspergers Syndrome a.k.a. High-Functioning Autism

Updated on November 1, 2017

Kylyssa Shay


Kylyssa Shay is a middle-aged American woman living with autism who enjoys sharing hard-earned life hacks with people who need them.

Contact Author

Sometimes, People with Aspergers Would Like to Stop Accommodating You and Relax

To present even a reasonable appearance of normality, many people with any degree of autism at all, even those of us who are labeled as high functioning, must memorize hundreds of social rules. We aren’t done even then; we still have to memorize what expressions on your faces mean what and practice in front of mirrors so we can put them on our faces when we communicate with you. We Aspies also have to try to decipher the hints, innuendos, subtext, and passive-aggressive attempts at behavior modification many people use instead of plain speech.

While we are doing all of that, we may also be attempting to simulate normal eye contact to make other people comfortable and to insure they don’t think we are sneaky, lying, or undependable based on what we look at or don’t look at on their faces and how we go about it. All the while, we’re worrying about whether people are going to misinterpret what we’re saying. Many Aspies are worrying so much it makes the concentration necessary to do all that other stuff somewhat elusive.

Most people appear to put more weight on body language, facial expressions, and physical appearances than on words or actions when it comes to what they think a person is saying and what they think of that person’s character. Most people have a lot of conditions they require fulfilled, a lot of rules they require to be obeyed, and a there’s a lot of acting to be done to communicate with them without upsetting them. They can easily become volatile and make verbal attacks or form intense negative opinions about us if we make even a minor misstep in communication. Communicating with non-autistic adults requires many people on the autism spectrum to almost constantly walk on eggshells.

Many people with high-functioning autism or Asperger’s Syndrome are spending most of their time in your presence doing difficult and tiring things to accommodate you. Most people only notice the slips, when our memories fail us and we forget how to make an expression correctly or perhaps choose the wrong one or when we react to what they’ve said rather than what they’ve meant.

As you can probably imagine, all of this makes having relationships very difficult for people with autism. People with even the highest-functioning forms almost never get an opportunity to just relax and enjoy themselves when other people are around. If those of us on the spectrum acted and spoke in ways logical and normal for us, the vast majority of people would never take the time or effort to get to know us or might even stop associating with us. Sometimes, it’s just too much work for us because we still have to do everything you have to do on top of it.

If you love or care about someone who has AS, I’m asking you to read on and consider a few compromises and very easy accommodations to our differences. With very little effort you can make the life of that person you care about easier and less stressful. You can improve your relationship by changing just a few of your habits every now and then so your friend or family member can sometimes just relax and be himself or herself around you. If you are looking to learn about getting along with high-functioning autistic people, you’ve found a great place to start.

Learn to be a better friend to someone with autism. | Source

DISCLAIMER: I am not a licensed therapist or medical professional of any kind. I am simply a person who has Asperger Syndrome, another name for high-functioning autism. The purpose of this page is to give insight to people wishing to understand more about AS on a personal level – to help them understand more about what it’s like to have a spectrum disorder. None of the suggestions on this page are intended as replacement for advice from a professional.

Stop Hinting and Using Subtext

Try to think about what you say before you say it. Are you meaning exactly what the words mean according to a dictionary or are you trying to say something more than the cut-and-dried words alone are stating? If you are trying to modify a person’s behavior without directly asking him or her in words, you are hinting. If you are trying to communicate something different from what the actual words say by combining them in a certain way to convey a subtle and more emotionally significant meaning you are using subtext.

Don’t beat around the bush, nothing is going to come out of it that you want! The person on the autism spectrum will only get confused and frustrated and is more than likely going to try to guess what you mean. I usually guess wrong and upset the other person. He or she usually guesses (incorrectly) that I’m being contrary or purposely rude or that I’m just pretending I can’t understand what is being hinted at.

Wouldn’t it be so much easier for everyone involved if we all just said what we meant?

Don’t beat around the bush, nothing is going to come out of it that you want!

Learn How To Talk About Aspergers

Lots of people in our culture don’t believe in the existence of learning disabilities or problems that do not have any visible physical indicators. This book helps explain that Aspergers exists and what it is in a way that would be helpful for use in communicating with people who do not understand what high-functioning autism is.

Stop Assuming Autistic People are Making Hints or Speaking with Subtext

Focus on the Words

You will get to relax a bit more if you follow this suggestion, too. When an autistic person is speaking to you, focus only on the words. Think about what the words mean strung together and let go of any feelings you may have that the speaker has hidden a secondary and secret meaning in them for you to find.

While some autistic people enjoy playing word games like making puns it is not usually natural for us to speak in emotionally saturated code like most people do. If you assume we are saying what we mean, you stand an extremely high chance of being right.

When people assume I am hinting it only frustrates me and makes them have difficulty understanding the actual words I have spoken, no matter how simple in meaning those words are. This makes other people seem a lot slower than they actually are. Average people usually aren’t stupid; they are just usually spending so much time searching for things that don’t exist that it sometimes seems that way. Perhaps this is why many Aspies seem to get along better with children than adults; children usually don’t speak in or expect other people to speak in hints or subtext.

Life isn’t a Cold War spy movie; we don’t need to communicate in code.

Think about what the words mean strung together and let go of any feelings you may have that the speaker has hidden a secondary and secret meaning in them for you to find.

Act on How Your Friend or Family Member Says She Feels, Not on How You Think She Ought to Feel

This seems kind of obvious and I think it’s good advice to apply to everyone you know, whether on the autistic spectrum or not. If your family member says doing a certain thing makes him uncomfortable, it makes him feel uncomfortable even if you think it shouldn’t. If your friend or family member says she is fine with something, she is probably fine with it even if you think she ought not to feel fine with whatever it is. However, many people learn to say they are fine with things they are not fine with (autistic or not) because they’ve learned that they can avoid the much more painful embarrassment of other people dramatically overreacting and making a scene.

With very little effort, you can choose to be polite and act like the autistic person means exactly what he or she says.

Please do not make a scene or attract attention in public when you decide to not believe what your friend with Aspergers says about how he or she feels. Insisting that that person act offended or acting loudly offended on his or her behalf will probably only make your friend or family member intensely uncomfortable, embarrassed, and ashamed. The more often you make scenes in public, the less he or she will want to do with you.

Let Us Be Ourselves

And really, really mean it

When you are spending time with your autistic friend or family member you can really ease the pressure on him or her by telling him or her that it’s OK for him or her to stop acting around you when you aren’t in a public setting. Only say this if you truly mean it. If you can’t handle a lack of eye contact, a lack of appropriate facial expressions or body language, or the presence of autistic behaviors such as hand flapping, spinning, or rocking do not make this offer.

Negative reactions to being ourselves when we’ve been invited to be ourselves are very emotionally painful and will cause us to lose a great deal of trust for the person who reacts in such a way. In my opinion, such reactions, when combined with a request to be ourselves, also make the normal person look like an immature jerk.

Be prepared to explain what you mean because people usually don’t mean we really ought to relax and be ourselves when they say that, they usually actually mean to act and speak as they do when they are relaxed.

I treasure the time alone with my significant other because he accepts me as I am with only a very little reassurance now and then.

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